Disability among young adults with congenital heart defects: Congenital heart survey to recognize outcomes, needs, and well‐being 2016–2019

Journal of the American Heart AssociationDowning KF, Oster ME, Klewer SE, et al. | October 25, 2021

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Disabilities may be experienced by two of 5 adults suffering from congenital heart defects (CHD), and presence of disabilities results in impaired health‐related quality of life (HRQOL) in such patients.

  • Analysis of the 2016–2019 CH STRONG (Congenital Heart Survey to Recognize Outcomes, Needs, and Well‐Being) population‐based sample of 19‐ to 38‐year‐olds with CHD from 3 US locations.

  • Among participants (n=1,478), disabilities were experienced by 40%, and most prevalent (29%) was cognition.

  • A 5 to 8 times higher prevalence of disability types was reported in adults with CHD vs the general population.

  • Greater odds of being female, and of having non‐Hispanic Black maternal race and ethnicity, severe CHD, recent cardiac care, and noncardiac congenital anomalies were present in those with ≥1 disability.

  • Impaired mental HRQOL was evident, on average, in adults with CHD and cognition, mobility, and self‐care disabilities, and impaired physical HRQOL was seen in those with any disability type.

Read the full article on Journal of the American Heart Association

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